I too lost a baby that was undiagnosed with a heart condition.
His 23 yr birthday is the 25th. I treasure every memory we made in ten weeks not only on special days but everyday. Do continue have Harrys story told so that yes just maybe it will save or help another child from medical neglect. God blessed you with your time you had so treasure it in every way you think right until again you hold your precious angel in your arms .
Of all the things that are left behind
When a person leaves this world,
The one to treasure above all else
Is the gift of one brave boy.
The battle ground to which he fought
Became a spiritual garden,
Of love and laughter, hope and faith
For others to grow strong in.
A gift you see is what he gave
To every one he touched.
A piece of him he handed out
And each time gave so much.
The world became a better place
The day that he was born.
The day he left the world agrees
A million hearts were torn
The joy he brought to those he knew
Will ensure that he will be missed.
But you were blessed indeed you were
That special gift was Harry your lil boy
sending good thoughts and prayer to you as you deal with this massive, unimaginable loss - may the memories you made with Harry comfort you when you feel weak, impatient, lonely, lost, afraid, bewildered and heartbroken ((hugs))